Clarifying

I would like to clarify a few things about my last post. Now that I’ve actually read what I wrote, heard some good feedback, and had a great conversation with my dad about it, I’m have a bit more clarity.

I’m going to start with an example. Examples and metaphors and comparisons help me fully understand things. So: imagine that, when I was born, there was some way of knowing that I was going to be a highly-sensitive introvert. Would I have wanted doctors to tell my parents, “eh, just let her be, it’s who she is and whatever that brings with it, she’ll deal with, it’s just her”? NO. What I would want them to say is, “Your daughter is a highly-sensitive introvert. Let’s give her support around managing her sensitivities and intense emotions, help her with her anxieties and obsessions, and capitalize on how this makes her who she is.” If those same doctors had said, “Your daughter is going to be a highly-sensitive introvert! Let’s help her recover from this so that she never feels extreme emotions and doesn’t have anxieties and quirks” then I would’ve lost who I am at my core. I would have lost my love for nature, my mixing of senses, my tearing up at a sunset or a song, my intuition around people, my understanding of the kids I work with…..it goes on and on.

That is what I was trying to get at in my last post. Do I want doctors to say, “Your child is autistic. Okay, good luck with that”? Of course not! I’m a speech-language pathologist. I believe in therapies, of all forms. I believe in therapies in all forms for all individuals, neurotypical or autistic. I believe in early intervention, I believe in getting children all the supports they need as early as possible.

I believe in helping them to be functional in their lives. Being as independent as possible. Being safe. Forming friendships. Connecting with others. Learning.

But I don’t believe in trying to extinguish their personal interests, their stims, their scripts, their quirks. That’s their core, that’s who they are. If we try to remove those (harmless) aspects of them, we remove their essence.

So when it comes to treating autistic individuals, there’s a difference between removing their core being, and helping them reach their full potential and quality of life.

And, as my dad pointed out, it’s also an issue of semantics. The term “recovery” is just a dangerous term here. It indicates that the individual is afflicted with something that needs to be fully gone. So, I’m particularly sensitive to the idea of helping kids “recover” from autism. Again, it’s an and, not a but. I’m sensitive to the term “recovery” from autism. And, I believe we should do everything in our power to support them to be the best they can be, as they are.

Author
Speech-Language Pathologist. Nature-loving, book-reading, coffee-drinking, mismatched-socks-wearing, Autism-Awesomeness-finder, sensitive-soul Bostonian.

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